In January 2020, I will have been fighting cancer for four years. Unbelievable. I never wanted to go through the process of traditional chemotherapy. Yet life means more to me than pain.
I eat I breath, and I like to be prepared. Now, I am joining the chemotherapy army. The Oncologist staff have stratagies to help kill cancer cells ,and it takes place in the chemo room. I have had my medicine port cleaned out in the chemo room. Now, I will be a participant this week, A Private with dreams of success, and fears of the effects the medicine has on my body. I have been looking at the chemo room hoping I will not have to sit there and have medicines inserted into my veins to fight my disease. Wish me luck , and pray the treatments will kill the bloody cancers trying to kill me. I call these cells demons. I will not give up.
Radiation side effects are different for most people. For me, the last round of 4 cyberKnife and 10 regular zaps of radiation has been difficult to swing back to normal. I am exhausted and when I stand up an acute sense of Vertigo overcomes me. So, I lye in my bed and rest. After a couple of hours I either fall asleep or try and stand up. What I realize is nerves may be the culprite Nerve pain is not easy to explain. Nerve pain feels like electrical currents that make twitchs and bodily movements on their own. So I rest, and pray the nerves will calm down, and all will return to normal soon.
My way to cope. I have two canes sitting by my bed, and on reserve a wheelchair. The wheelchair and my husbands band has been my entertainment. I sit in my wheelchair and practice wheeling on my deck. It’s fun, and will be useful when I need it. When the band comes over I get to listen to great music. Life is interesting. It is all about how you handle it, and having positive people surrounding you. PEACE
Stage 4 Living Life to the Fullest With Terminal Cancer
Pain is subjective. Everyone has their own pain threshold. The medical community gauges a patient’s pain level between one through ten. One being the least to ten the worst amount of pain.
If you have never experienced chronic pain, it is hard to comprehend how it feels? I experienced sleepless nights where finding a comfortable position was impossible., simple acts we take for granted like walking…breathing…become arduous tasks. Chronic pain is no joke?
What happens before you are a “patient” In “chronic pain?” Living without access to prescription pain medications. It isn’t pretty! Living becomes and exercise in control. Trying anything “legal” to help make it through the seconds, minutes and hours of the day. In a nut shell “Getting through the day becomes a frantic search for help?” Unfortunately, in most cases it takes Doctors time and a lot of testing to find out what is wrong, and put a label on the cause of the pain? So that medication can be prescribed. For me it took four long months to be diagnosed with lung cancer.
I will never forget what I call the “c-battle.” Living with active cancer cells wreaking havoc in my body. Causing destruction and irrevocable damage to my body, and without treatment the awful cancer cells grew strong and metastases down the vertebrae of my neck and spine. Fracturing seven vertebrae, and killing nerves along its path of destruction. All the while I begged my primary care physician for an MRI, and was told “your insurance will not cover it.”
So, I have put together a list of do’s and don’ts from mistakes I made, and helpful tips on how to navigate the quagmire of red tape patients face within the medical industry.
I am writing this book to help me come to grips with my disease…as well as giving others who face a similar fate…who struggle like me everyday… inspiration on how to live life to the fullest with cancer.